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Time to Deliver

l-r: Gus Nasmith
(Rutland, VT), Christine
Oyaro (Kenya), David Hooks (Pittsfield,
VT) at International AIDS Conference. |
by
Augustus Nasmith, Jr
"Do you close your eyes to
the pain in the world?" Glenn Marais sang plaintively at the August
18 closing ceremony of the XVI International AIDS Conference in Toronto.
The more than 26,000 conference participants do not. Seeing and experiencing
the pain, they unite in uncommon global solidarity and purpose to confront
the huge challenges of HIV/AIDS. Striving for human fulfillment, motivated
by unconditional love and caring for others, characterizes those at
the conference.
As does outrage at the continuing
suffering and death from abuse, denial, ignorance, greed, stigma, discrimination,
and voids in leadership and responsibility. Thus, the conference theme:
"Time to Deliver," AIDS holds a stark mirror to horrific human
failings. Why doesn't the pain provoke more outrage and action everywhere?
Twenty-five years after the identification
of the Human Immunodeficiency Virus (HIV) that causes Acquired Immunodeficiency
Syndrome (AIDS), the world pandemic continues, even though it is physically
quite easy to block transmission of the virus. Culturally, it is not
easy. Globally, more than 20 million deaths have occurred. Today, some
40 million worldwide are living with HIV/AIDS.
In the devastated societies in sub-Saharan
Africa, political leaders still fail to lead, and their counterparts
throughout the developing world are as criminally slow to wake up. In
the Caribbean, the epidemic continues unchecked. HIV is also spreading
throughout the former Soviet Union, China, the Indian sub-continent,
southeast Asia, Pacific islands and in much of Latin America. Denial
is so strong in northern Africa and the Middle East that there are not
even accurate statistics, let alone programs.
Of the heartrending pain of AIDS,
the impact upon children in the developing world cannot be ignored.
More than 18 million under the age of 18 are orphans, with 12 million
of these in sub-Saharan Africa. Many young adults have been child orphans
themselves; brought up by grandparents or extended family caregivers,
or living in the streets. Infected children may be the last to be considered
for treatment, for when treatment is rare, children are often presumed
fated to die anyway.
Stigma
Stalls Efforts
Stigma and discrimination cripple all.
Many avoid learning their health status and act sexually as if they
and their partners could not be infected. The U.S. experienced the worst
of stigma in the earlier days of the epidemic, but many of us don't
realize the degree to which stigma and discrimination still exist in
the workplace, in health care settings, and in political and religious
arenas. Perhaps most devastating to people with AIDS is when the ostracism
is internalized, leading them to avoid health care.
Approximately one million live with
HIV in the U.S., and 40,000 new HIV infections per year reflects our
own inadequacies. Rates have increased in marginalized populations of
African Americans, Hispanic Americans, and young gay men. Intravenous
drug users and prisoners are neglected. We are a wealthy country, but
without universal health care, many with HIV/AIDS struggle to obtain
medicine and basic living costs. Sixth-tenths of one percent of our
population is infected. Imagine how it is in poor countries where the
infection rates may be ten times ours. Unless you have been in the stifling
or freezing one-room homes without running water or electricity, witnessed
those bedridden, or the children grateful to have one meal a day, it
is hard to imagine.
Moralistic Measures Not Helpful
In president Bush's proposed 2007
fiscal budget, approximately $20 billion is designated for domestic
AIDS-related funding, and less than $4 billion for international efforts.
This is about 1% of what the Iraq war has cost thus far. The President's
Emergency Plan for AIDS Relief (PEPFAR), pledging $15 billion over five
years to bilateral efforts for 15 designated countries, has been significant.
However, I agree with those who argue that greater dedication to the
multilateral Global Fund to fight AIDS, tuberculosis and malaria would
be more helpful.
Implementation of what is known could
stop HIV in its tracks right now! Sadly, in addition to the ignorance,
denial and abuse by men throughout the world, supposed leaders in the
Vatican and the Bush administration thwart prevention programs of condom
use and needle exchange. Moralistic "abstinence only" approaches
are allies of the virus. In the Islamic world, those in power deny the
realities of sex work and that men have sex with men. Such denial fuels
the spread of HIV into all sectors of society, for HIV is blatant proof
that the marginalized and often despised members of the human family
are actually linked to us in interconnected circles of sexual contact.
As Melinda Gates put it, "If
you are turning your back on sex workers, you're turning your back on
the faithful mother of four."
But there are also "success"
stories. Some years ago, the visionary Brazilian government guaranteed
medical care, including necessary drugs, to all those infected with
HIV. The predicted increase of infections was cut in half! If people
know that their society cares, they are less crippled by fear and hopelessness,
and thus, more likely to protect themselves and others.
The Cost of Treatment: Progress
and Challenges
Just a few years ago, the cost of antiretroviral
drug therapies (ARVs) was so prohibitive that in the developing world
only a miniscule elite could afford them. Grassroots activism and solidarity
brought about by international AIDS conferences, and the UN General
Assembly Special Session (UNGASS) on HIV/AIDS in 2001, have dramatically
reduced prices for HIV drugs for the developing world. Generic drug
production in Brazil, India and Thailand; outspoken thinkers like economist
Jeffrey Sachs, the Nobel Prizewinning Doctors without Borders, and conference
participant Bill Clinton, have been forceful and creative actors in
drug price reduction. There can be no relaxation in these efforts. Bush
administration attempts to impose trade agreements on developing countries
that would raise drug prices to crippling heights have been condemned
as "neo-colonialism."
Toronto spotlighted that, of the
6.8 million people living with HIV in low- or middle-income countries
who require ARVs, currently only 24 percent have access. Worse, of the
800,000 children under 15 who need such medication, only 8 to 13 percent
are treated. My fellow survivors at the conference - friends from Kenya,
Nepal, Peru, Thailand, Uganda, the Ukraine and elsewhere - physically
reflect and tell of their health restored by ARVs. They exemplify what
must and can be done for all. Commitment to the equal value of each
life on this planet prompts "can do" rather than "not
possible" responses. The progress has been too slow, and the impediments
to healthy lives go beyond provision of ARVs, but the dam of the "impossible"
has been broken.
Needed: Health Care, Food and Water
For effective prevention and care, we
must reverse brain drain and build the critically needed corps of health
care workers in the developing world. In addition to more clinics, the
people need adequate food and clean water. Is this further reason not
to see the pain? Not when UN estimates are that only 66 cents per person
per day would provide what is necessary!
Those meeting the challenges of
AIDS have shown, as conference Co-Chair Mark Wainberg of Canada put
it, "... that partnerships that link science, medicine, community
and political activism can translate into action." If we open our
eyes to the pain in the world and refuse to be crippled by fear and
hopelessness, we can enjoy a freed positive state of mind.
It is "time to deliver," not
only to prevent the spread of, and care for those living with HIV/AIDS,
but to achieve the good of which we are capable. Howard Zinn's credo
is immune-enhancing: "... to live now as we think human beings
should live, in defiance of all that is bad around us, is itself a marvelous
victory." Our justified outrage and response become an invitation
to human fulfillment for all.
When we care for others, we care for
ourselves.
Augustus "Gus" Nasmith,
Jr., who retired from the office of international affairs of the National
Academy of Sciences, lives in Rutland, Vermont. He became infected with
HIV in 1983.
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